At the beginning of May, I posted an article, "Understanding our Little Friends & Everyone Around Them". The post was about a 4-year-old little boy named Justin with self-regulating issues and sensory issues. The article went on to look at how Justin’s development delays impacts different members in a nursery school community. (To read the original post go to: http://www.advocate4students.com/blog/understanding-our-little-friends-everyone-around-them)Â
 When I posted the article, I asked for readers to co-author a follow-up to "Understanding our Little Friends & Everyone Around Them" giving solutions to the different obstacles and concerns the different members of the community were encountering with embracing and helping Jason and themselves. To my most pleasant surprise, Jennifer Long responded, embracing the opportunity to co-author such an article with me.
 Not too much time passed after our brainstorming session and Jen sent me a draft of her part of our co-authoring article. IT WAS AMAZING. It was genuinely written by a mother who has experienced first hand the "Justin Experience". There was nothing I could add. If I had added anything, it would have detracted from such an intimate knowledge of such a personal struggle to see your child accepted.
 Without further ado, I share Jen's response to my article. If you visit Jen's social media site, you will immediately recognize why her response is so articulate. You will also be dazzled by Jen's love of life.
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PREFACEÂ Â Â Â Â Â
Anne Cunningham authored the beautiful post, “Understanding Our Little Friends and Everyone Around Them.” I read it. It happened naturally, realizing, “I have been Justin’s mom!” A wave of horror overcame me. But then a calm peace, with the hope filled question, “How could this be handled better?”
For the rest of this story, I feel it best to number my thoughts or I am fearful I will leave some nuance of the plot, performers, setting, and/or other important matters unturned. It is my goal to leave us all filled with answers of how we can take a challenging child, bringing him/her, and everyone else out in a way that produces the best case scenario.
ABOUT ME
Before I try to answer all the clinching conundrums the first post posed, I better introduce myself (I’ve probably come off a bit abrupt. My kids might get it honestly, sigh.). I am the Fantastic Four’s Mother, who all have different diagnosis, challenges, behaviors, and medical conditions. Yes, I have four kids. They are all mine. No, they are not adopted. No this is not a group home. Blogging has become my hobby, hopefully my income producing vehicle to do even better by my small brood of children. You can check it out, if you dare, at www.positiveparentingspecialized.com. I also am a Young Living Essential Oil Distributor, although I do not YET have a trench coat with oils underneath that I sell in back alleys, sorry.
I love my children dearly. With every dead end, dreary diagnosis, terrible teacher conference; I wanted to help my kids as much as possible. I didn’t want to “fix” them. My heart is to equip them the best for independence as an adult. At no point have I felt that I am forcing my image of what a perfect child should be on them. The goal has always been to make it so they could get through an airport without any challenges. I have no idea why that has been my most focused destination, but it is what it is.Â
My oldest son went to preschool. Separating from me was a nightmare. He would scream, run after me, and all that drama was with my mom being an aide at the preschool! I remember they would have to snatch him up, hold him on their laps so I could slip outside.
This brings me to the point: I was Justin’s mom! I was the one no one knew what to say to. The mother of the child, the other kids whispered about. It wasn’t just with my oldest son.
No, sadly, my youngest son was much the same way. The variable was he attended a special needs preschool. One would think that the parents there would be more inclusive. My youngest Cutie, jargoned. He would stomp, crying throughout the day. Potty training was not on the radar. Parents stared, no one really reached out to me that I can remember, until he was diagnosed with diabetes (another story for another day)…
So, I have been Justin’s mom twice over. Really, I have been it three times over. But, my youngest “kept it together” a little better than her brothers at school. That is a story for another day.
- Having the right staff. The Number One Way to Help the Justins of the World would be for the right staff to be present. If a staff member were to recognize sensory issues at a tender age of three or four, that would be a GAME CHANGER for the child. The child would receive services before the “Golden Age” of five, which is early intervention! This means before Justin’s brain gets very set in its ways, he could retrain it to behave differently, much easier than if he were older. If the staff member hooked Justin’s family up with evaluations, occupational therapy, speech therapy, and perhaps a specialized preschool meant to help his needs (which includes typical peers), I would put money down that Justin would look like a different child by kindergarten, but certainly by first grade!
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- Justin’s mom’s attitude. The Number Two Way to Help the Justin’s of the World would be for his mom to be proud of Justin no matter his behavior. I’m not saying when he melts down that she is all cheers, celebration nation up in here. What I am saying is that she celebrates when he has desired behavior, she over emphasizes his victories. It would be optimal for Justin if she reached out to other moms for playdates, even though she is connected to “That Kid, the Crazy One.” What I did, was try to recognize the kids my boys gravitated to. Then I made a hard core attempt to form at least an acquaintance with those kid’s moms. It was awkward. However, getting my boys around kids, possibly helped them bloom. If your kid is acting like “The Crazy Kid,” own it. Be genuine. I found some moms to be real mean. However, most were willing to try. Meeting at parks was the most “comfortable” place for me. We had some disasters of breaking people’s valuables when we played at houses. Parks, indoor playground’s, those places go better (for me).
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- The Preschool made extra effort. The Number Three Way to Help the Justin’s of the World would be for the preschool to make extra effort by doing several things.
- Getting a Behaviorist to monitor the child’s behavior, setting up a behavior plan, showing teachers their best approach with “Justin.”Â
- Setting up a small social skills group during a part of the day where Justin is his best, perhaps right after nap time. Possibly take a child Justin gravitates to, a staff member, and Justin to a quiet space and practice playing blocks together. This one on one attention might feed Justin in amazing ways.Â
- Giving Justin sensory breaks, time to regulate (walks to the drinking fountain, walks down the hall, let him hang out in a quiet space with bean bags until he is centered, etc.) when the staff can see he is being triggered.Â
- Preschool would be AMAZING if they put a floater in the classroom during Centers, or other times where Justin has issues. This way, there is an extra person to help Justin, which frees up the other teachers to keep the class flowing (this one might be a financial burden, but if it keeps the teachers, kids, and Justin doing better, it might be the best spent money… EVER).
- The preschool might also be proactive. In this day in age, I doubt Justin would be alone in his struggles. Maybe they post about parent support groups, developmental milestones, screenings for delays, etc.Â
- I feel if Facilities meet the children, families, and staff head on, embracing every child where they are at, trying to do best by each child without being critical; in that environment – everyone can win. It is when the school comes across as though your child is the next Jeffrey Domer, there is a giant problem. Tempers flare. Accusations fly. It is best to come across as a team, wanting best for all.
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- The Preschool Teacher Teaching Inclusion. The Number Four Way to Help the Justin’s of the World would be for the preschool teacher to convey empathy, acceptance, and inclusion to her class. This could be accomplished by reminding the class when Justin is struggling, “Justin hates to be dirty. He is sad. Can someone get Justin a paper towel? Thank you Vicky for being a good friend to Justin.” It could also be helped by reading books such as When Sophie Gets Angry and The Way I Feel, aloud. The biggest thing to teach children is that kids who act differently are not less, they are just different. At this age, it is good to point out differences, then, telling them that difference brings beauty. We need differences or life would be dull. Kids that act differently are not bad, they are struggling. They are challenged. Getting the other kids to be in “assistance” mode to the Justin’s would be amazing. My youngest’s son’s preschool was that way. The other kids would tell the teacher when Champ was acting funny, knowing his blood sugar needed checked, which I felt was pure AWESOME!
As I close, I just want each person reading to know: my three youngest kids have had autism diagnosis. They still struggle. Yet, today, they are doing better than I dreamed. Do not give up on your kids. Celebrate their strengths. If they show an interest, build on it. If they can’t stop pounding on a surface, pound with them. Meet the kids right where they are. It may not get to some story book fairy tale, Stepford Child scenario. But, I promise you: if you rally around your child, being their greatest ally, cheerleader, and playmate. Life can’t be all lemons with the previously stated skill set. Bond with your kids no matter if they are a Justin or a Vicky who leads, thrives, and beats every milestone.Â
I hope this helped in some small way. Much thanks to Anne Cunningham for finding little old me on Planet Twitter. Thank you Anne for having a heart for my Fantastic Four. We need more of you!
Thank you for reading this. Please come again soon. Blessings to you,
Jenn
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